Measurement blogs

Home-BASMI: feasibility and tolerability of a remote-consult, video-delivered application of the BASMI (an early report)

December 2020

Introduction: Objective measurement of movements for people living with axial spondyloarthritis is a core part of care, especially so for physiotherapists. Whilst these measurements have no doubt been going on for longer than this, their standardisation was first popularised by the Bath Ankylosing Spondylitis Metrology Index (Jenkinson et al. 1994). The creation of the Bath indices stems from the work of a research team consisting of rheumatologists, physiotherapists, and research associates with a specialist interest in AS at the Royal National Hospital for Rheumatic Diseases (RNHRD). With respect to the functional and disease activity indices, the team obtained input from patients with AS. As a part of their role out, the Bath Indices were studied for reliability, speed, variability, reproducibility, and sensitivity to change. The studies involved a good sample size of between 163 and 392 subjects, some of whom were in-patients undergoing an intensive course of physiotherapy for 2 to 3 weeks at the RNHRD.

The problem: The necessary limitations on clinical practice imposed by the COVID pandemic have meant almost all rheumatology appointments have switched to remote consultations. These consultations can be undertaken over the phone or via a number of different video conferencing applications. Soon into this switch, it was noted by specialist physiotherapists working in axial SpA that continuing to regularly measure BASMI was very challenging in these remote consultations. BASMI is generally considered a core part of regular review – most physiotherapists like to use it, but the real drive is from those people living with axial SpA who report it to be a great way to monitor their movements and how they are getting on with their exercises. Outcome measurements have been reported to:

(1)    Improve the quality of care

(2)    Improve patient-healthcare-professional communication

(3)    Tailor patient therapy to improve patient outcomes (Dobrozsi and Panepinto 2015)

With no soon end to the restrictions to face-to-face appointments, there is a need to find a way to still work with people with axial SpA in this way. We are aware there are a number of projects on-going to develop digital methods of completing the BASMI and these are no doubt the future of remote BASMI, however, these could be a while yet in production and testing so we felt as a group that we HAD to come up with something to consider to use right now for remote BASMI assessment.

Aim: To assess the feasibility and tolerability of a simple, immediately-available version of the BASMI for remote assessment and monitoring.

Methods: The committee of the AStretch group of specialist physiotherapists reviewed the standardised BASMI instructions (https://nass.co.uk/wp-content/uploads/2018/09/Bath-Indices.pdf) and considered which components of the instructions would have to change to ensure they could be followed by the general public. Through the AStretch committee group, we drafted, re-drafted and eventually accepted a version 4 of the instructional document. For clarity and to differentiate this from the 1994 BASMI we have opted to name this re-draft home-BASMI (click here to access .pdf copy).

To enable an assessment of the feasibility and reliability of this home-BASMI we identified the use of an upcoming online conference that included a number of specialist rheumatology physiotherapists and a large cohort of people with lived experience of AxSpA. With support from the National Axial Spondyloarthritis Society (NASS) we sent the home-BASMI document out, two weeks in advance, to the 97 booked attendees at this national axial SpA physiotherapy-themed conference - NASS-AStretch “Physio in Focus”. During this afternoon meeting we had two sessions where 7 physiotherapists were available in separate “tables” to assist people with axial SpA, and their helper in their household, to perform the BASMI according to our home-BASMI instruction sheet. In addition to the instruction sheet, potential participants were sent a cut-out-and-keep goniometer to assist in measuring the neck rotation; we requested that they supplied their own tape measure. We assessed how long it took to perform each set of measures and collected feedback from those being measured, their helper and the specialist physiotherapists guiding them.

Results: As a part of the 7th Nov 2020 “Physio in Focus” meeting run jointly by NASS and AStretch, 21 people with a diagnosis of axial SpA were measured using home-BASMI, our novel remote, video-guided BASMI tool. There were 7 physiotherapists who assisted in the process of completing the home-BASMI measurements for these 21 people. All participants did have someone in their house to support them in undertaking the measures. The average time to complete the DIY-BASMI was 8 minutes.

Feedback is as follows:

Feedback from the people with an axial SpA diagnosis and their measurement helper

Positive

Mixed

Negative

“Easy to measure the side flexion, leg spread and tragus to wall parts”

“Not complex to follow, the pictures helped a lot”

“People have measured me before, but I’ve never been told why or what it means –thanks for letting me know today”

“The handout provided a very helpful explanation and is an excellent facility”

“Both the BASDAI and BASFI are self-report measurements. So get the BASMI out there for self-report.”

“Making me think more about interpreting my measurements and using them gain more from my exercises.”

“I noticed a difference in my lumbar side flexion one side to the other – should I be concerned?”

“could you produce a video of how to perform this?”

“have trialled this week, but always get a different number for my forwards flexion”

“the forwards lean feels the toughest to measure”

“The spinal illustration measurement was the only one difficult to be reasonably precise.“

“Where exactly is the tragus?”

“Still not too sure where the L4 vertebra is”

“The maths was a bit tricky”

“have tried a few times, but always get a different number for forwards flexion test”

“please create a video of this”

“Courtesy of COVID it was not possible to ask another person in to help take measurements for myself. Not sure that I would want a friend or relative to do this anyway”

“The back extension test (where you draw points on the lower back) was tricky - wasn't sure exactly where to put the points”

Feedback from the physiotherapists

Positive

Mixed

Negative

“Not so tough as I had imagined”

“Okay with BASMI naïve axial SpA – seemed okay to explain the how and why”

 “She hadn’t managed to print off the goniometer, I ‘eyeballed’ her Cx rotation, it was easy as she had 90o to one side and slightly less (roughly 85o) to the other”

“brought in metal tape measures but managed to use with adjustments”

“Less nerve-wracking than I expected…happy and confident at the end of the trial“

“patients were interested in what the BASMI means”

“It seemed to go well and enjoyed by the participant”

“I found giving clear instruction was key but honestly didn’t use a script as such as you want to keep observing and end up giving the instructions in mini-chunks as they get ready for each step.”

“Making good use of the camera to demonstrate helped to…pointing to the tragus., demo of a chin-tuck etc.”

“…had never had her measurements done before so had no prior experience. However, she found it straight forward and managed it really easily”

“you would need to have an engaged person who wants to be measured”

“She did not have any previous experience of the BASMI…they were in fits of laughter doing the forwards flexion measure”

“I think it's important to demonstrate no adverse events”

“camera zoomed in would have identified measurement errors”

“both felt sheets were helpful but required someone in person to go through the measurements too ”- felt explanations were helpful”

“I think that the patients need to write the instructions with us and that we need to have several alternative ways which achieve roughly the same result remembering that this will be the way that they use each time.“

“none were confident on finding L4 for the Schober's”

“a video, as well as written instructions, might be helpful”

“A video made will assist self-measuring at home”

“A short training video may also help and we could ask the group if they wanted to see professionals or maybe more of a cartoon character or avatar image”

“simplifying the maths would be helpful, especially in the lumbar side flexion protocol”

“both female participants did not want to reveal their spine to the camera for LS flexion measures so unsure if they spotted L4 accurately”

“measurement errors are definite”

“only had a metal tape and therefore struggled with the schober measurement”

“side flexion may be hard to stop people cheating if the person is really stiff”

Limitations: These measures were not performed in a clinical setting and hence none of the data was shared. We are unable to assess how similar the results of this home-BASMI measurement technique would be to a traditional face-to-face BASMI. However, we had aimed to assess tolerability and feasibility. This was a very small sample size and a sample of convenience, all delegates had opted to book onto the conference and we would therefore assume that they would be more engaged with physiotherapy and its goals and purposes.

Conclusion: There is sufficient feedback here to continue to the trial application of this remote consult version of the BASMI. It is not a perfect situation and we suspect the measures scored in this remote manner would struggle to show sufficient correlation to face-to-face to ever consider this as a valid, reliable replacement. However, in a situation where consultations are usually remote, we have shown the feasibility and tolerability of a remote-consult version of the BASMI.

Future research: The long-term answer is almost certainly a digital assessment tool and we are delighted there is on-going research into this. We can however in the meantime recommend to fellow clinicians the remote home-BASMI protocol as a time-efficient and feasible option. Results from this version of the BASMI should not be compared to previous scores, but would still be a useful tool to allow reflection upon current exercise and stretch routines, to support self-management and to partially evidence any gross changes (negative or positive) in spinal movements.


Authored by the whole AStretch Team

 

References:

Calin  A.  Can we define the outcome of ankylosing spondylitis and the effect of physiotherapy management?/  Rheumatol 1994^1:184-5

Dobrozsi, Sarah & Panepinto, Julie. (2015). Patient-reported outcomes in clinical practice. Hematology. 2015. 501-506. 10.1182/asheducation-2015.1.501.

Jenkinson  TR,  Mallorie  PA,  Whitelock  HC,  Kennedy LG,  Garrett  SL,  Calin  A.  Defining  spinal  mobility  inankylosing  spondylitis  (AS):  The  Bath  AS  MetrologyIndex  (BASMI).  J  Rheumatol 1994^1:1694-8

Martindale JH, Sutton CJ, Goodacre, L (2012) An exploration of the inter- and intra-rater reliability of the Bath Ankylosing Spondylitis Metrology Index. Clin Rheumatol (2012) 31:1627–1631

Update for 2021...
WE WON AN AWARD!

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A Turn for the Better

Having the chronic disease axial spondylathropathy (AS), has had its advantages. It has given me the opportunity to be part of a complex, evolving and fascinating world. Before my symptoms really kicked off whilst working in New Zealand, I was destined to follow a long career in general outpatient physiotherapy. Now looking back, however, I had rather fallen into rather than chosen this path. In 1992, following my spell recuperating from reactive arthritis (see previous blog for more information) and under the expert care of Dr Ian Gaywood at Swindon Hospital, my journey began. My role as metrologist soon expanded into clinic work encompassing all aspects of patient care and assessment. At a time when outcome measures were not yet standardised, I then joined Dr Calin and his team at ‘The Min’ in Bath interviewing patients in preparation for the Bath indices. These were exciting times

Subsequently, I heard about the inspirational work of physiotherapist, Sue Fletcher, and her team of Allied Health Professionals (who were mainly Physiotherapists) at Christchurch Hospital. As part of her dedicated rheumatology follow-up clinic, I continued to be mentored as I learnt to decipher blood results and X-rays, and advise patients on their (rather limited at that time) medication. We were shown how to inject shoulders, wrists and knees. We were ahead of our time but few people knew of our existence. In 1994, acknowledging the need for more formal training, the whole team were encouraged to undertake a specially devised Post Graduate Diploma and Masters course in Advanced Clinical Rheumatology at Bournemouth University. This comprehensive 2 year course was compiled by Sue Fletcher and Dr Karen Mounce, Consultant Rheumatologist at Christchurch Hospital. Once graduated and buoyed up with enthusiasm, we decided to call ourselves Rheumatology Practitioners. We thought that as an army of practitioners we were going to conquer the world!! Sadly this was not to be the case. After we had graduated, the University course was never repeated and that is a great loss. The course relied on undergraduates being part-funded by their hospital but at the time, few hospitals shared our enthusiasm or had the funding. However, armed with the skills and confidence, I decided to start up more rheumatology follow-up clinics closer to home. Despite being a Physiotherapist and not a Nurse (who traditionally took these roles), I managed to convince the medical staff at both Salisbury and Southampton hospitals that they needed me as a side kick to lessen their load and that I was also good value for money! The Consultants were extremely trusting and supportive in my work with the patients and they had an open door policy in times of need. Patients were happy to be seen by someone who could empathise with their symptoms, was at the end of the phone in times of need and could offer them the time they needed in clinic. We were still pre-biologic therapy at this point so care needs were complex and drug side-effects were a constant issue. Salisbury and Southampton had an excellent Physiotherapy and Occupational Therapy department and all my patients spent time in these departments as part of their programme. Although I was not working as a traditional Physiotherapist, my previous experience in MSK came in useful and with the support of NASS, I over saw the creation of the Southampton and Salisbury NASS exercise groups.

Then, the late, great, Physiotherapist, Jane Barefoot nominated me as Physiotherapy Advisor to NASS; but walking in her footsteps proved to be a difficult task. I felt I could not carry the burden alone and that patients so desperately needed more help. A group of rheumatology physiotherapists heard my cry for help and AStretch was born in 2001. The not-for-profit organisation has subsequently grown into to what it is today making a huge impact in patient care and knowledge dissemination. Meanwhile I continued my work as Rheumatology Practitioner and I really felt that I had found my calling. For nearly a decade, I enjoyed helping to solve complex issues, gaining knowledge and making good friendships with the patients and staff. When I left work in 2004 to look after my young daughter, biologics were in their infancy and life for the staff and patients were about to change radically. Sadly it took many more years before AS patients could benefit from Biologic therapy but I can talk from experience, it has been a life saver. Nowadays there is so much more help, support and guidance for patients with AS. NASS now employs 10 staff and amongst many other initiatives, is involved with parliamentary campaigns to increase the profile of AS and AStretch is an integral part of the organisation. In hospital departments across the land, rheumatology is taking centre stage and there are Allied Health Professionals working as clinical specialists making a big difference. Many of the frontline staff are members of AStretch and many have contributed by attending AStretch courses and conferences. As a member of AStretch, I feel privileged to be working alongside physiotherapy colleagues so passionate about the care and wellbeing of AS patients and their families. It has been so rewarding and such a pleasure to be part of this world and I consider myself lucky as my career would never have gone in this direction without my AS.

Juliette

Outcome Measures

2018: The Bath Indices, outcome measure information booklet, for use with A.S. patients, was reviewed and edited by four members of the AStretch Committee-  Heather Harrison, Karen Irons, Amanda Thomas and Jane Martindale. The extensive reference section represents the vast literature search undertaken, this was supported by the librarians at Wrightington Wigan and Leigh NHS Foundation trust.


The 2018 updated version of the Bath Indices can be obtained from:  
https://nass.co.uk/wp-content/uploads/2018/09/Bath-Indices.pdf

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