Why Tai Chi in Axial Spondyloarthritis?
 
I have been teaching Tai Chi to this patient group for more than fifteen years; the thing that strikes me is how much they enjoy it and how it enables them to increase their function very quickly.
Why should this be? certainly not magic!!
If we think about the symptoms that most of these people experience, pain, stiffness, postural changes, fatigue, sometimes reduced chest expansion and general mobility (walking).
It is generally agreed that exercise has a beneficial effect on these symptoms.
“I was afraid to go out, my pain had become intolerable and I was afraid of falling. The Tai Chi classes have given me a reason to get out of bed on a Monday morning, I now go for a walk after class and at six weeks I can now manage two hours after the forty-minute class, thank you”.
This lady had obviously been struggling for some time and had tried many other forms of exercise,
swimming and daily strenghtening and stretching, often recommenend in Spondyloarthritis and also afford  benefits such as improved mobility, muscle strength and subsequent pain and fatigue management.  
However, these exercises do not fully address the issue of balance.

Balance is the ability of the body to remain steady in a chosen position; to move smoothly and safely through small body adjustments. Postural control requires complex interactions within the musculoskeletal system, sensory and cognitive systems. Joint stiffness at spinal, hip, knee and ankle joints reduces the body’s ability to right itself and reduces proprioceptive awareness. Postural changes also affect balance due to the alteration in the centre of gravity. Ankylosing Spondylitis patients have been found to have a poorer balance in comparison to healthy subjects and it is recommended that postural awareness be included in early treatment plans.
So, we get back to this lady and her fear of falling, a fear of falling is one of the biggest predictors of a fall, and the increased propensity to osteoporosis in this patient group will increase the fracture risk. Inactivity reduces one’s ability to compensate and contributes to other problems, including loss of bone and muscle mass, heart disease, and obesity as well as social isolation.  

Tai Chi is practiced in a normal balanced standing position, constant movement of the limbs and weight transference improves flexibility and strength in the lower limbs particularly around the knees and ankles has a positive effect on proprioception and balance reactions and on circulatory systems to joints muscles and vital organs. Co-ordinating arm movements challenges balance and improves positional awareness giving better sense of position in space, over time this is translated into daily activities. Slow repetitive movement helps to re-educate neural pathways improving the system interactions and therefore normal movement patterns.
What else? Well; this lady obviously enjoyed her Monday morning classes, certainly social interaction can have a positive psychological effect which cannot be overplayed. Tai Chi is a “mindful” exercise. Participants are encouraged to concentrate on the here and now and only on their breathing and development of their movements. This can have a calming and relaxing effect which in turn aids concentration and memory which improves pain and fatigue. Of course, the inclusion of breathing exercise throughout the programme has the added value of increasing chest expansion and vital capacity.

In short Tai Chi is an integrated form of exercise which can be included in exercise prescription at any stage of the disease. 

Sue


Singing

I have always enjoyed singing. At school we made records (we are talking about the 70s), sang in concerts and managed to get on Songs of Praise! Over the years wherever I lived, I joined a choir or operatic society and performed in various shows.   

One day a female Barbershop Chorus called Spinnaker Chorus came to my town and they sang acapella style (without sheet music) in four-part harmony. I listened and marvelled at the sound. Their faces expressed the passion of the song, their bodies swayed with the music and they stood tall. What fabulous postures they all had. To top it all, they really looked like they were enjoying themselves! I joined up immediately. That was 10 years ago.  

Since joining Spinnaker Chorus (www.spinnakerchorus.co.uk) I have never looked back.  At last, I was taught how to sing effectively. Using the mouth, larynx, facial muscles, rib cage and good posture, we are taught how to perfect the sound.  Then in time to the music, and maintaining our posture, we move with the rhythm. The work out begins. For some of the songs choreographed moves increase the work out still further.  We learn how to breathe, holding onto the breath throughout a phrase, then snatching a breath in unison at certain intervals.  By the end of the song, the rib cage has moved to its limit and we are breathless from the aerobic nature of the exercise.  

There have been articles written about singing and its positive effect on our physical and mental health. The release of endorphins certainly plays its part, the work out another.  So too does being part of a group of people with the same passion.  If you are thinking about singing in a choir or a chorus, it has to be worth a try. The physical, emotional and psychological benefits can be dazzling.

Juliette has had AS since she was 11 and is the founder of Astretch.

 

The power of the Voice

Having been diagnosed with a Chronic life changing condition is not an easy thing to accept.

One of my hobbies has always been music, when my lungs became a problem I decided to take up singing seriously. I sat my theory exams with young children. I had better mention that at this time I was 60 years old. For the singing exam I waited patiently with these youngsters who were brimming with confidence. Me? I was shaking in my shoes. However, I passed all my exams with distinction. I did notice as I studied and practiced during those hours, was that my pain became less pronounced, I became so focused.

I still belong to a choir “The Melody Makers” we practice once a week. I’ve found that I have gone to practice feeling unwell and in pain. Once I start singing the pain recedes, it becomes less dominant. It does make me feel tired but when I get home I am able to totally relax.

I find it is not just the music that helps it is also contact with other people. Many of the choir members have got physical problems but there love of music seems to help.

After finding how much my music had helped me to control my pain I joined other groups, art and a swimming club. The time spent with all these groups I actually feel normal. All I have to do is prepare for each activity in advance and realise there is a small price to pay; the next day I rest
.

Jan.
 

Bollywood Dancing and Ankylosing Spondylitis (AS)
 
Dance is reported as the UK’s fastest growing art form with more than 4.8 million people regularly attending community dance groups each year in England alone. One added advantage in dancing is that while you’re having fun moving to music and meeting new people, you’re getting all the health benefits of a good workout.

As a physiotherapist I strongly feel regular dancing is great for maintaining strong bones, improving posture and muscle strength, increasing balance and co-ordination, beating stress levels and losing weight.

Bollywood dancing: Bollywood dancing stems from the Indian film industry and has increased in popularity throughout the world since the beginning of the 20th century. Bollywood dance is known for being upbeat; it blends the unique traditional Indian dance forms  with the modern western hip-hop and jazz dance styles.

Bollywood and AS: My Husband Raj is a music/dance lover and a choreographer, using our whole family effort over the past 5 years we have conducted few local Bollywood programmes.  Grimsby NASS group member and Treasurer Jeanne Murray attended our local Bollywood programme and expressed interest in including some dance routines at our NASS group. The members enjoyed the 5 minutes dance work-out and evaluated the session to be different, easy to exercise, enjoyable, fun-filling and did not report any adverse effects. We gradually started including Zumba and line dance forms, we plan to include few more routines in the future.

Big High five to the Grimsby NASS group members!  Big Cheers to all the Bollywood dance lovers.


Susimala
 

Laughter and the love of life

A few weeks ago I had a conversation with a colleague about a patient of hers who I had met in the hydrotherapy pool. This patient had presented in the department suffering from long-term musculoskeletal disease and chronic pain. She was morose and lacking in motivation both with exercise and socially, in fact she rarely left the house. Following initial assessment and treatment she was referred for a course of hydrotherapy.

This lady struck up a friendship with a fellow patient attending the same treatment session as they travelled together on the same hospital transport. This pair soon became the life and soul of the sessions, encouraging other patients and creating havoc and amusement in equal measure. On review, her physiotherapist was amazed at the change in this lady, her posture and physicality had improved dramatically along with her sense of well being and her ability to manage her chronic condition. She is continuing to socialise and exercise with her new friend.

What had brought about this dramatic change? The magic warm water and exercise, skilfully taught by her physiotherapist? Or, the power of friendship, interacting, sharing, offloading and laughing with another human being?


Sue


 
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